Ehlers Danlos Syndrome สาธารณะ
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Bendy Bodies with Dr. Linda Bluestein

Dr. Linda Bluestein, MD

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Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Hypermobility Happy Hour

HypermobilityHH

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Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on thi ...
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Bed BACK and Beyond

Christine King

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Sharing positive stories of recovery after a herniated disc or other spinal cord injury. Join herniated disc champion CK as she has informative and encouraging conversations with other back injury survivors. From people who elected to have back surgery (microdiscectomy, laminectomy, fusion, etc) to those who used more conservative methods, plus all things in between, join our podcast, and let's talk about how life can move beyond the bed after injury. If you are dealing with the isolation an ...
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The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted. Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information.
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Earn your OT CEUs by listening for free to our episodes, then logging into the OT Potential Club to take a quiz and earn a certificate. In each episode, we discuss new OT-related research and invite an expert guest to pull out actionable takeaways. Perfect for occupational therapists and occupational therapy assistants. Episodes are released every other week.
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Memoirs of a Mindful Life

Brian R. King

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An interactive podcast to help entrepreneurs grow their businesses by unleashing their natural resilience. Since I’ll be broadcasting these episodes live using the BLAB network. Viewers will be able to post questions during the show. This is a very exciting venture and I hope that you’ll join us. Brian R. King, LCSW is a 27 yr cancer survivor, adult with ADHD & Dyslexia as well as the father of three sons with Asperger's and ADHD. In addition, Brian suffers from Ehlers-Danlos Syndrome Type 3 ...
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Fit As A Fiddle

Dr. Sneha Gazi

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If you want the "in" on your health, search no further. Fit As a Fiddle brings you top tips from experts in many fields of health and wellness. Grow with our community as you learn how to enhance your overall physical and mental wellbeing.
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Welcome to Finding Your Range, the Podcast which uncovers the truth behind living with hypermobility, Ehlers-Danlos Syndrome and chronic pain. Your host is Jeannie Di Bon, a movement therapist who specialises in working with clients with these conditions. She is also the author of two books - Pilates Without Tears and Hypermobility Without Tears. She is an educator of teachers and therapists in the field of movement for hypermobile patients and speaks regularly for The EDS Society and the HM ...
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The Spoonie Struggle

Jessica Temple

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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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You’ll want to listen to this show if you’ve been trained in Myofascial Release (MFR). Heather Hammell helps MFR therapists get fully booked, see 20 clients or less, and make 100k. Even if you’re just starting out, even if you live in a tiny town and even if you’ve been in business for years. Learn how you can help more people get out of pain and back to active lifestyles while making more money than you knew you could. Let’s ditch starving healer syndrome and change our industry forever. Fi ...
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PodcastDX

PodcastDX

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PodcastDX is an interview based weekly series. Guests share experience based medical insight for our global audience. We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ail ...
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Sensory Matters

Sensooli

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Sensory Matters is a weekly podcast featuring expert interviews from the world of Sensory Seeking, Stimming & Autism. Supporting the World‘s Number 1 community of Sensory Seekers at sensooli.com this show is all about helping sensory seekers, avoiders carers and professionals with useful, interesting and inspiring stories. Find out more at, sensooli.com
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RX Physiotherapy

April Patterson & Brendan Casey

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Welcome to the Rx Physiotherapy Podcast – your ultimate destination for expert insights on physio, rehab, health, and wellness. Join hosts April Patterson and Brendan Casey, seasoned physiotherapists as they dive deep into captivating topics each week, covering everything from physiotherapy essentials to nutritional secrets. Dr. April Patterson, founder of RX Physiotherapy, holds a Doctor of Physiotherapy degree from Bond University. Her personal experiences with conditions like Ehlers-Danlo ...
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Patient Stories with Grey Genetics

Grey Genetics

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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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A-typical Person

Nora Runnalls

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Me and little Bear talk about all different sorts of disabilities and the challenges that come with. Sometimes we have a random friend join our podcast and talk with us. After (almost) every intro we do Guess That Symptom which is a game you guys can play along with. To send us a voice message please use this link https://anchor.fm/rachel-runnalls/message to find my Facebook page go to https://www.facebook.com/atypicalperson.podcast/
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The Writing Glitch is brought to you by Dotterer Educational Consulting. Our Founder and Owner, Cheri Dotterer, is the host. Build courage, compassion, and collaboration to help students thrive and grow leaders that transcend a lifetime, regardless of dyslexia, dysgraphia, and dyscalculia, using sensory-motor processing and neuroscience-based instructional interventions. No Pencil Required! We interview teachers, therapists, and parents about how they have seen a transformation in children h ...
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Rights Upfront

Chandy & Rights Upfront

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Welcome to the Rights Upfront Podcast, where every story finds a voice. Join us as we delve into the world of disability rights and inclusion, amplifying diverse voices and advocating for change. From personal experiences to expert insights, each episode explores the challenges, triumphs, and ongoing efforts to promote equality and accessibility for all. Whether you're passionate about disability rights or simply curious to learn more, tune in to be inspired, informed, and empowered. Join th ...
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My Chronic Illness and Me

Katie Donlevie

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Living with a chronic illness can be an incredibly isolating experience. It can feel as though you're navigating life -- your illness itself, your experience with the medical system, communicating with your job and with loved ones -- completely by yourself. In this podcast, Katie, a coach who works with people living with chronic illness and who lives with a chronic illness herself, talks to people about their illnesses & conditions, their experiences, and their lives. The purpose is to shar ...
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Inspirational Tales

Inspirational Tales

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A podcast that features interviews with inspirational guests who: - Have overcome adversity and turned their challenges into triumphs AND/OR - Are making a positive difference in the world Once a fortnight, you will hear the inspiring story of a guest who has experienced a challenging time in their life. As a result of these challenges, these guests have chosen to learn, grow and better themselves. Their stories showcase resilience, strength and the ability to thrive following adversity. Wit ...
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Dear Friends And Family

Dear Friends And Family

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Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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The Blonde & The Bald

Drs. Elizabeth Bagley & Frederick T Schurger

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Are you experiencing back pain that you can’t get rid of? Getting migraines and/or having trouble sleeping with no identifiable cause? Do you feel like you’ve tried everything out there to treat these aches and pains but have little to no improvement? Chiropractic treatment might be the solution you’ve been looking for. There is hope yet! Get expert guidance from Blair chiropractors, The Blonde and The Bald, Drs. Beth Bagley & Frederick Schurger. On this show, they explain how chiropractic c ...
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In this episode of The Writing Glitch, Cheri Dotterer is joined by Lindsey Ball, an athletic trainer and biomechanics expert, to discuss her experience living with Ehlers-Danlos Syndrome (EDS), a connective tissue disorder. Lindsey shares her personal journey, the challenges EDS brings to everyday tasks like writing, and how she navigates athletic …
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Unfortunately, research on the lived-experience for those with Ehlers-Danlos Syndrome shows us that we as a profession need to be doing a better job. People with Ehlers-Danlos Syndrome report: A lack of reliable information for themselves Social stigma from peers. Lack of awareness of EDS in the healthcare community As occupational therapy professi…
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In this episode we will discuss Halloween Safety during COVID ​ Fall celebrations like Halloween and Harvest Day are fun times for children, who at one time could dress up in costumes, enjoy parties, and eat yummy treats. These celebrations also provide a chance to give out healthy snacks, get physical activity, and focus on safety. ​ Check out the…
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Join Heather as she sits down with Stephen Wuest, owner of Enlightened Body in Chicago, Illinois. Fresh off a rejuvenating vacation in Spain, Stephen shares his inspiring journey from being a massage therapist for 30 years to discovering and fully committing to MFR therapy. In this episode, Stephen reveals the challenges and triumphs he faced, incl…
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As occupational therapists, many of us have witnessed the wonder of motor learning in neuro rehab. Yet despite years of research attempting to identify the most effective post-stroke interventions, the reality is that our understanding of how to improve recovery of function remains incomplete. The article we are reviewing today serves as an update …
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreakin…
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Send us a text Join us for an enlightening episode of Bed Back and Beyond as we sit down with the inspiring Cara Dinote, a skilled acupuncturist whose journey into acupuncture and Chinese medicine is nothing short of fascinating. Cara's transition from studying psychology in Philadelphia to practicing acupuncture in San Diego showcases her dedicati…
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Silicosis is a lung disease caused by inhaling tiny crystalline particles of silica, or silicon dioxide, often linked to work environments like mining, construction, stonework, and sandblasting. The disease leads to symptoms such as coughing, inflammation, and fibrosis (scarring) and is classified under pneumoconioses, a group of lung conditions ca…
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As a Myofascial Release (MFR) therapist, you know the profound impact your services can have on your clients. But how do you communicate that value effectively online? The answer lies in compelling website copy that speaks directly to your best fit clients. In this exciting episode, Heather is joined by her friend and life coach, Miish Grixti who s…
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In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importa…
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Send us a text What if a simple round of golf changed your life forever? This episode of Bed Back and Beyond features Matt, a 34-year-old from New Jersey, who shares his compelling story of battling a severe back injury that spiraled into sciatic pain and debilitating symptoms like foot drop and pelvic tilt. Matt opens up about the frustrating jour…
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Jamie Holmes-Ward was born with a rare condition known as V.A.T.E.R Syndrome. The Cleveland Clinic says: VATER syndrome, also known as VACTERL association, is a complex condition that affects several parts of the body. VATER (VACTERL) is an acronym that stands for the affected parts of the body including the vertebrae, anus, heart, trachea, esophag…
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We’re thrilled to announce our latest podcast episode featuring Abigail Southgate, an inspiring MFR therapist who has taken her practice to new heights by creating impactful self-care workshops. Abigail, a member of the Beyond 100K Mastermind, has developed a program called "Instructor Training for Fascial Health: A Self-Care Workshop." This online…
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In this episode of The Writing Glitch, Cheri Dotterer speaks with Kirk Lunde, a special education tutor and former pediatric respiratory therapist. They explore the often-overlooked connection between air quality, sensory processing, and learning challenges, particularly focusing on math and writing difficulties in children. Kirk shares his journey…
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those…
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Send us a text Ever wondered what drives someone to get back on a motorcycle after multiple collisions? Meet Gallo, a resilient business owner from Reno, Nevada, who shares his incredible journey from tradesman and bartender to the proud owner of a live music venue called Sucias. Gallo's story is a testament to living life fully, despite the risks,…
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This week we discuss bullying with our guest Chelsey Peat. Chelsey is an advocate for those with facial differences due to Sturge Weber Syndrome. A person that looks different is a prime target for bullies. Bullying is often seen as a schoolyard issue, but its impact on mental health extends into adulthood. Bullied children face increased risks of …
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Tune in to hear Angie deBorja's (deBorjuh) transformative journey in the Beyond 100K Mastermind. Angie operates deBorja Physical Therapy and Myofascial in Baltimore MD. She has been in private practice specializing in MFR since December 2022. She combines total body movement assessment and John Barnes' Myofascial release to help adults get back to …
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In this episode of The Writing Glitch, Cheri starts a book study on her groundbreaking work, Handwriting Brain Body Disconnect. Joined by veteran occupational therapist Teresa Roderigues, they explore the intricacies of dysgraphia, including its various forms, common symptoms, and effective intervention strategies. Teresa shares powerful insights f…
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Let’s get political folks! As mental health overall has gotten more attention in the media over the last 4 years, so has the very important topic of PMADs, or Perinatal Mood and Anxiety Disorders. After the latest CDC findings on the alarming maternal mortality rate, many facets of government are starting to pay attention to mothers and birthing in…
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In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies…
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Send us a text What happens when a professional brewer's back gives out, and he's left immobilized for weeks? Eric Stuhlmacher's journey from severe back pain to resilience offers valuable lessons for anyone dealing with chronic pain. In this episode, Eric shares the raw, emotional highs and lows of living with a herniated disc. From a sudden immob…
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This week we will discuss the most common type of Ehlers-Danlos syndrome – the hypermobile type (hEDS, formerly also described as EDS type III or joint hypermobility syndrome), this is the type that most commonly presents to gastroenterology services. ​ As connective tissue is present throughout the body, many different structures around the body i…
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In our latest podcast episode, we feature Patti Calkins, an incredible MFR therapist who transformed her practice from $5,000 months to over $19,000! Patti shares her journey, the challenges she faced, and the strategies she used to achieve this phenomenal success. Learn about the power of mastermind coaching, the importance of mindset, and how to …
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In this episode, we take a closer look at what causes knee pain and how physiotherapy can help ease that discomfort. Whether you’re facing a sudden injury or dealing with ongoing issues, it’s important to understand what’s really behind your knee pain to start the recovery process. We’ll share insights as physiotherapists along with practical tips …
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In 50 years, you will look back on your occupational therapy practice and see a clear line in the sand between pre-AI augmented documentation and today. Ambient AI augmented documentation is going to: ✅Make documenting QUICKER ✅Make your notes HIGHER QUALITY ✅And, transform how you interact with clients And, if we harness this technology correctly,…
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Does Nessy follow the Science of Reading (SOR)? This episode of The Writing Glitch is the product review for last week’s episode. Cheri Dotterer takes you on an in-depth tour of Nessy, a popular educational program designed to enhance reading and spelling skills in children. Cheri discusses her experiences using Nessy, its alignment with the Scienc…
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Pain is real whether it is felt immediately after a traumatic event or in the absence of apparent tissue damage on imaging. We now know through pain neuroscience research and understanding the biopsychosocial approach to chronic pain that patients’ perceived experiences of pain are unique to them and are entirely valid. On the show today, we have D…
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In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of var…
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This week we will discuss the most common type of Ehlers-Danlos syndrome – the hypermobile type (hEDS, formerly also described as EDS type III or joint hypermobility syndrome), this is the type that most commonly presents to gastroenterology services. ​ As connective tissue is present throughout the body, many different structures around the body i…
  continue reading
 
In this episode, Heather welcomes Jamie Bomtempo, a former student and myofascial release therapist who owns Zest Myofascial Release in Jacksonville Beach, Florida. Jamie believes that "anyone can benefit from myofascial release, especially people with hypermobility." Tune in as she shares her personal journey of living and working with hypermobili…
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In this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally.Links: Instagram: https://www.instagram.com/leahpinnington_author/My Hypermobility on Amazo…
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Most healthcare professionals strive to put patients first. But what does that really mean? In the practice of physical therapy specifically, it means a lot of things, beginning with listening to the patient. On our show today, Dr. Diana Mayants joins us to chat about the physical therapy profession as she sees it. Diana is a dual-board certified o…
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In this episode of "The Writing Glitch," Cheri Dotterer welcomes Mike Jones and Tiffany James from Nessy, an organization dedicated to supporting individuals with dyslexia. Mike and Tiffany share their personal experiences with dyslexia and discuss Nessy's journey in creating innovative learning tools to help students and educators. They dive into …
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In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on livi…
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Send us a text Imagine being a successful business owner and mother, and then, in an instant, everything changes due to a devastating car accident. This episode of Bed, Back, and Beyond brings you the awe-inspiring story of Erica Sosna, who faced the unimaginable challenge of being paralyzed from the waist down after a car accident during a snowsto…
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This week we will discuss the use of Ketamine for treating Depression. Our guest for this week's show is Karen DeCocker, DNP, PMHNP, CNM Karen DeCocker is the Director of Advanced Practice Providers at Stella overseeing the assessment team. She helps to identify which innovative biological medical treatments & virtual therapies can help relieve sym…
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