Ep#007: Privacy Protection in the Age of Personalized Medicine with Dr Rachele Hendriks-Sturrup

Personalized Medicine Podcast

In episode 7 we are addressing a topic that is important in many areas of personalized medicine
– data privacy protection, together with Dr. Rachele Hendricks-Sturrup. Rachele is a prominent
academic in the field of consumer privacy and currently serves as a Health Policy Counsel at the
Future of Privacy Forum. The Future of Privacy Forum is a nonprofit organization that aims to
explore the challenges posed by technological innovation and develop privacy protections,
ethical norms, and workable business practices together with industry, academics, consumer
advocates, and other thought leaders. The organization ‘fills the void in the space not occupied
by law’ – in fields like personalized medicine which are rapidly evolving technologically.
Together with Rachele we have discussed
◦ The aims of Future of Privacy Forum
◦ Privacy challenges in genetic testing services
◦ Best practices around the use of direct-to-consumer genetic testing
◦ Direct-to-consumer genetic testing company selling rights to develop a drug
◦ Striking the balance between privacy and discovery
◦ Privacy challenges in AI and Machine learning
◦ Medical databases in an increasingly digitized healthcare system
◦ The future of privacy and data in personalized medicine
Get in touch with Rachele:
◦ Linkedin: @Dr. Rachele Hendricks-Sturrup
◦ Website: www.fpf.org
◦ FPF Blog: https://fpf.org/category/blog/
Make sure to download the full show notes with our guest's bio, links to their most notable work and our recommendations for further reads on the topic of the episode at personalizedmedicinemedia.com