What You Want to Know, But Were Afraid to Ask (Part 1/2)

I'm Dying to Tell You

In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was great to have a wide range of experience to learn from. I love the incredible support and curiosity for this unique episode. We had such an amazing "round table" discussion, I decided to have 2 episodes so we could address all the questions. In this part 1/2, we answer questions about, fears of dying, mental health, survivor's guilt, what brings joy, boundaries, faith and more. Part 2 will release as the next episode where we answer questions about mental strength, the grieving process, bucket list, sex/intimacy, thoughts on getting a trach, fears about what's to come and planning our own funeral. I hope you'll listen in and share with a friend. Hugs, Lorri
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