My Journey as a Special Needs Mum: Hawaiki's Fight Through Comas and Misdiagnosis

The Jess Ngaheu Show

Have you ever wondered what it's like to parent a child with special needs? The unexpected challenges, the heartbreak of medical struggles, the relentless fight for their wellbeing?
Join me for a deeply emotional journey as I share the harrowing story of my son Hawaiki's first few months of life. His difficult birth and extended NICU stay were just the beginning. Misdiagnosis, medical complications, and two terrifying comas – this is our fight for Hawaiki's life and a heartbreaking look at how the hospital system sometimes fails our most vulnerable. Yet, through it all, we find the strength to keep believing.
Key Takeaways:

• The emotional rollercoaster of parenting a child with complex medical needs.
• The importance of advocating tirelessly for your child, even when it's difficult.
• The challenges of navigating complex medical systems.
• Finding strength and love amidst immense hardship.

Chapters:
0:00:00 - 10:02:00 - Introduction to the Podcast and Episode Theme
10:02:00 - 0:07:00 - The Birth of Hawaii and the Beginning of His Health Struggles
0:12:00 - 0:15:00 - The Emotional Toll of Preparing for Emergencies and Hospital Life
0:15:00 - 0:20:00 - Christmas Day Crisis: Rushing to the Hospital and Facing the 0:20:00 - 0:28:00 - The Second Coma Induction and Transfer to a Specialised Children's 0:28:00 - 0:36:00 - Interactions with Healthcare Professionals and the Challenges Faced
0:36:00 - 0:44:00 - The Difficulties of Managing a Misdiagnosis and Hospital System Flaws
0:44:00 - 0:50:00 - The Ongoing Medical Battle and Advocating for Hawaii
Quotes:

• A mother's love knows no bounds, especially when her child is fighting for their life.
• When the hospital system fails you, a mother's voice becomes the loudest.
• Misdiagnosis can have devastating consequences. Always question, always advocate.
• Sometimes the biggest battles are fought within hospital walls.

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