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#090: Empowering the black MS community – advocacy, awareness, and support with Natalie Diana Busari
Manage episode 453594348 series 3562061
เนื้อหาจัดทำโดย Nele Handwerker เนื้อหาพอดแคสต์ทั้งหมด รวมถึงตอน กราฟิก และคำอธิบายพอดแคสต์ได้รับการอัปโหลดและจัดหาให้โดยตรงจาก Nele Handwerker หรือพันธมิตรแพลตฟอร์มพอดแคสต์ของพวกเขา หากคุณเชื่อว่ามีบุคคลอื่นใช้งานที่มีลิขสิทธิ์ของคุณโดยไม่ได้รับอนุญาต คุณสามารถปฏิบัติตามขั้นตอนที่แสดงไว้ที่นี่ https://th.player.fm/legal
Natalie focuses primarily on advocacy, awareness and support in her work to empower women and girls from the black MS community.
You can read the whole interview on my blog: https://ms-perspektive.com/90-natalie-diana-busari
Living with multiple sclerosis can be an isolating experience, but what happens when you feel even more invisible because of your community, culture or ethnicity? I am delighted to be speaking today with Natalie Diana Busari, the founder and CEO of The Nerve Of My Multiple Sclerosis CIC. Natalie is a patient advocate dedicated to addressing the challenges faced by Black people living with MS, particularly Black women and girls, who are often underrepresented and underserved in research.
Through her organization, Natalie is not only amplifying the voices of marginalized groups, but also creating much-needed resources to empower individuals and build a more inclusive MS community. Whether it’s advocating for better representation in research, sharing personal experiences to inspire others, or helping patients navigate the healthcare system, Natalie’s work supports many people in their everyday lives.
In this episode, we will explore her journey from diagnosis to advocacy, discuss the unique challenges faced by Black people with MS, and learn about the initiatives that Natalie’s organization is driving to create lasting change. If you are seeking a deeper understanding of the diversity within the MS community or are a patient looking for empowerment and support, this interview is for you.
Be inspired by Natalie’s story, her resilience and her vision for a future in which inclusion and equality are the norm in MS care.
Table of Contents- Introduction - who is Natalie Diana Busari?
- Personal and Professional Journey
- Health Inequalities and Representation
- Impact of the Patient Organisation and Advocacy Work
- Bridging the Gap in MS Research and Clinical Trials
- Empowerment and Awareness
- Quickfire Q&A Session
- Farewell
Natalie Diana Busari is the founder of „The Nerve Of My Multiple Sclerosis CIC.“ This organisation is dedicated to supporting and representing Black individuals living with multiple sclerosis, with a primary focus on Black women and girls.
Fun Fact: Natalie is passionate about design and enjoys drawing in her spare time. She also has a background in web design and development, which continues to influence her work today.
Finally, what message of hope or encouragement would you like to share with individuals living with MS?To individuals living with MS: remember that there is life beyond diagnosis. You are not alone; there is a supportive community ready to help you navigate this journey.
How and where can interested people find you online?You can find Natalie online through „The Nerve Of My Multiple Sclerosis.“ Stay tuned for updates as they are currently working on enhancing their online presence! But in the mean time you can type “the nerve of my ms on most social media platforms and we will be there.
Thank you for tuning in!
---It’s fantastic and very much needed to have people like Natalie around to raise awareness for underrepresented groups of MS patients. And I’m sure that she will keep on making a difference.
See you soon and try to make the best out of your life, Nele
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