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#069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne
Manage episode 428119591 series 3562061
เนื้อหาจัดทำโดย Nele Handwerker เนื้อหาพอดแคสต์ทั้งหมด รวมถึงตอน กราฟิก และคำอธิบายพอดแคสต์ได้รับการอัปโหลดและจัดหาให้โดยตรงจาก Nele Handwerker หรือพันธมิตรแพลตฟอร์มพอดแคสต์ของพวกเขา หากคุณเชื่อว่ามีบุคคลอื่นใช้งานที่มีลิขสิทธิ์ของคุณโดยไม่ได้รับอนุญาต คุณสามารถปฏิบัติตามขั้นตอนที่แสดงไว้ที่นี่ https://th.player.fm/legal
MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials.
You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne
Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rachel Horne Award to raise the visibility of women in MS research. The selection is made by a number of volunteers from International Women in MS according to clear criteria.
Rachel also advocates for a more diverse group of study participants in clinical trials. This could help to find the right treatment for each individual MS patient, regardless of age, gender, ethnicity or co-morbidities. The greater the diversity of the study population, the better it is possible to assess effects and find out who benefits most and who does not.
Table of Contents- Introduction - Who is Rachel Horne?
- Personal Experiences and Coping Strategies
- Rachel Horne Prize for Women's Research in MS
- Exploring the Influence of Gender and Ethnicity
- Patient Advocate Activities
- Quickfire Q&A Session
- Farewell
My name is Rachel. I was born in Canada and have lived in the UK for more than 30 years. I was diagnosed with MS in 2009 – about 15 years ago. I am married and have two adult children. Hobbies – I have to say reading!
Finally, what message of hope or encouragement would you like to share with individuals living with MS?I think it is so easy to forget that treatment into MS is a neurological success story. We now have over 20 drugs to treat our disease. People are living longer, better lives with the disease. The days of ‘diagnose and adios” are gone… though I am aware there are many countries in the world where this is not so.
How and where can interested people find you online?I am on X (formerly Twitter): @RachelHorne19
---Thanks to Rachel for all her efforts in making the world more diverse and balanced,
See you soon and try to make the best out of your life, Nele
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