42: Deepening Engagement of Service User Participation Within Research and the Mental Health System


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Marie Brown, Ph.D., and Nev Jones, Ph.D., join Dr. Dixon and Dr. Berezin to discuss steps to build a pipeline of researchers with significant psychiatric disabilities and intersecting lived experiences and to increase service user participation in the U.S. mental health care system.

Dr. Brown is a licensed clinical psychologist, postdoctoral fellow at Columbia University Irving Medical Center, and a cofounder of Hearing Voices Network NYC. Dr. Jones is an assistant professor in the Department of Psychiatry at the University of South Florida.

  • How the authors began their collaboration [1:35]
  • Genesis of the collaboration on the two Open Forum pieces in Psychiatric Services [2:38]
  • Background of advocacy to have people with lived experience in mental health research positions [5:00]
  • A paradigm of what meaningful participation would look like [7:59]
  • Should the same standards of participation and inclusion apply to other research areas? [11:47]
  • Is research disconnected from practice? [16:01]
  • Steps the research community and academia can take to address these issues [22:11]
  • Self-disclosure of psychiatric disability/lived experience [27:30]
  • Deepening engagement of service user participation within the mental health system [31:50]
  • The “radical roots” of the concept of peer support [34:33]
  • What relational psychotherapy has to do with deepening engagement and service user participation [39:18]
  • How Dr. Brown’s experience with the Hearing Voices movement has informed her work [46:31]
  • Activities designed to deepen engagement and help build a diverse lived experience pipeline [48:19]

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